Research

An Infant With Trisomy 18 and a Ventricular Septal Defect

Abstract:

Decisions for critically ill infants with trisomy 18 raise thorny issues about values, futility, the burdens of treatment, cost-effectiveness, and justice. We presented the case of an infant with trisomy 18 to 2 neonatologists with experience in clinical ethics, Annie Janvier and Felix Okah, and to a parent, Barbara Farlow. They do not agree about the right thing to do.

"Ms Farlow speaks for the parents who come down on the side of treatment. These cases raise the most fundamental questions about the value of life, the meaning of personhood,
and the limits of parental and professional authority. Deference to parents is generally the right course unless the infant is clearly suffering from ongoing treatment that is unlikely
to be of benefit. The doctors in this case did the right thing: they worked to find common ground. As often happens, the infant surprised everybody." —John Lantos, Section Editor

Deveber Institute: Post Secondary Education and Parenting

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The deVeber Institute's nationwide study of resources available to pregnant and parenting students on university campuses in Canada.

Most women feel that if they become pregnant while attending a post-secondary school, they cannot both complete their education and proceed with the pregnancy.

One way to analyze this option is to discover what kind of resources are available to this specific group of students. When pregnant and parenting students cannot find campus resources the message is clear: your time here is over.

The deVeber Institute of Bioethics and Social Research compiled a survey that consisted of six categories: education, housing, child care, health care, child-friendly campus and financial aid. This survey was completed for each of the 86 registered Canadian universities and each university was asked the same questions.

For more details of this study and The deVeber Institute please visit www.deveber.org

Compassionate End of Life Care: for Adults with Developmental Disabilities

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At an evening co-hosted by L'Arche Toronto and the deVeber institute, three speakers share the challenges and joys of caring for people who are at the end of their lives.

Susan Morgan, MDiv, community chaplain with Saint Elizabeth Health Care, York Region, Ontario, Canada

Dr. Paul Zeni, MD, family physician and palliative care consultant for North Halton, Ontario, Canada

Jane Powell, graduate of a Certificate Program in Grief and Bereavement and co-facillitator of a grief group for members of L'Arche Toronto with developmental disabilities.